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Chemicals can Cripple



 


support groups

There are two Porphyria support groups on Yahoo! :

http://health.groups.yahoo.com/group/porphyria/   (the better of the 2)
http://health.groups.yahoo.com/group/porph/
(Of the 400+ members on each group, only about 20+ post regularly. Strong evidence that a number of lurkers are corporate "spies" for US chemical and pharmaceutical companies.)
 
For best information on Porphyria (IN THE USA) the HIGHEST RECOMMENDATION goes to:http://members.tripod.com/~PorphBook/
 
Also HIGHLY RECOMMENDED: (In Canada):  http://www.cpf-inc.ca/
This one is highly informative and very supportive.
 
 
In New Zealand: http://www.nzord.org.nz/internal.asp?CategoryID=100006&ArticleID=100168
 
In Australia: http://www.uq.edu.au/porphyria/
 
For Europe and the UK: http://www.porphyria-europe.org/index.asp
 
In South Africa: http://web.uct.ac.za/depts/porphyria/
 
This group IS NOT recommended (in the USA) : http://www.porphyriafoundation.com/  It is supposedly the official USA one. It is not.

2005 - 2012

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